Online Patient and Partner Support Opportunities

Social media provides many opportunities for patent and caregiver support. Here are some options:

• Dialysis and Kidney Disease Support
• Kidney Pancreas Transplant Support
• Dialysis Discussion Uncensored
• ESRD Transplant and Dialysis
• Kidney Support: Dialysis, Transplants, Donors and Recipients
• Transplant Buddies
• Peritoneal Dialysis
• Polycystic Kidney Disease
• People of Color Renal, Kidney, Dialysis and Transplant Support Group
• Home Dialysis Central

Excellent national education, support and advocacy organizations:

• DaVita is well known for their recipes but they also have a forum for patients too.
• Renal Support Network provides many support and advocacy services including a phone support line.
• AAKP is a comprehensive resource focusing on the quality of life for kidney patients through education, advocacy, patient engagement and the fostering of patient communities.
• National Kidney Foundation provides a portal for patients too.

Caregiver resources:

• Aging Care
• Family Caregiver Alliance National Center on Caregiving
• VA Caregiver Support